4 Responses to “MEDIA”

1. Peter Hofland

   January 31, 2011 at 8:37 pm

   Hi Claudia,

   As the editor of Onco’Zine – The International cancer Network, I’d like to let you know that we’ve included a part of your story online at http://oncozine.ning.com/profiles/blogs/new-national-conference-on .

   If you have any questions, please do no hesitate to contact me.

   Looking forward to hearing from you.

   Kind regards,

   Peter Hofland, PhD
   Sunvalley Communication
   Editor Onco’Zine

   480 626 7218

   Reply
2. Marissa Levesque

   April 26, 2011 at 1:39 pm

   Here is a link to the Custom Pink-Surance, breast cancer themed motorcycle that is being built for the cause. It is truly amazing how the community has stepped up to help previvors! http://johnston.patch.com/articles/custom-chopper-in-the-works-to-support-pink-surance

   Reply
3. Christa Nenaber

   May 11, 2011 at 8:31 pm

   Hi Claudia,

   My genetic counselor and friend in Vail, CO sent me your website. I have really enjoying browsing through all of your information. I also am BRCA1 positive. I found out a little over 3 years ago, I am 28 years old now.

   My mom has had breast cancer twice and is currently going through her 4 th round of chemo , just on ovarian cancer. It has been quite the journey for her. Both breast and ovarian cancer are extremely strong from her side of the family.

   This past March 2011, I decided to have my ovaries and uterus removed for preventative reasons. Of the interviews I have watch which you posted, I can relate to many of your concerns and thoughts. I am not married, nor do I have anyone significant in my life, which made this decision extremely hard. But what it came down to for me was my health and being able to live the life I want to live.

   I am so excited about your blog because this entire experience has made me want to be more involved, start a blog, and just get more young women connected who are BRCA1. I wished I had a young unmarried woman to talk about the experience with having these surgeries. I hope to start getting more young women connecting through the web/ phone/ whatever. Some forum for discuss, support, etc.

   But I wanted to say I think it is so wonderful and inspiring that you have started your blog! Thank you for starting it. If you were ever interested, I would love to chat more with you about our experiences and who knows what else can be created!

   Best wishes to you,
   Christa Nenaber

   Reply
4. Suzanne Hollander

   May 15, 2013 at 6:47 pm

   Claudia,

   We are so moved by your story. I have a television network that would like to interview you this week.
   Can you please call me – *** **** ****Thanks – Suzanne

   Reply