Archive for October, 2010

Going Live!

By on October 24, 2010 | Category: Claudia's Blog | 2 Comments

It began three weeks ago when I got a phone call from Georgetown University Hospital. I can still hear the voicemail clear as day. There was so much excitement bursting in her voice, she couldn’t get the words out fast enough. “The TODAY Show wants the story!” said Marianne Worley, head of media and public relations at the hospital. “You’ll be on October 7th, call me immediately.” Read more …

Megan Thomas

By on October 22, 2010 | Category: Previvor Stories | No Comments

My name is Megan, I am 24 years old, and am a BRCA1 carrier.  When I was 12 my Nanny past away from Ovarian Cancer, through those 12 yrs I had watched her fight breast cancer on and off. There were a few times where she was put into the intensive care unit, and was told she would not make it. Two out of the three times they were wrong. Read more …

Sue Swenson

By on October 22, 2010 | Category: Previvor Stories | 2 Comments

I am of Ashkenazi Jewish decent (my grandmother was born in Germany and was Jewish). My sister, 13 months my elder, died of breast cancer in 2002. She was diagnosed at approx 32 yrs of age.  I am now 53, and have been an engineer- project manager at IBM for 31+ yrs. Read more …

Thao Tiedt

By on October 22, 2010 | Category: Previvor Stories | No Comments

My mother’s sister died of breast cancer in her early 30’s. My sister died of breast cancer in her early 40’s. My mother had breast cancer in both her late 40’s and late 60’s but didn’t die of it. Many of my female counsins on my mother’s side have had breast cancer. Read more …

Elizabeth Bryndza

By on October 12, 2010 | Category: Previvor Stories | 6 Comments

My PREVIVE story is a unique one, and my journey is much different than Claudia’s. I am not BRAC1 or BRAC2 positive, and I have no family history of breast or ovarian cancer. But, during my sophomore year of college, at the age of 19, my life changed completely. Read more …

Mary Selden

By on October 9, 2010 | Category: Previvor Stories | 3 Comments

My mom died at age 40 from breast cancer. She suffered with it and complications from it for 6-7 years. That was 19 years ago. So for the past 19 years I have had this in the back of my mind, “when is it my turn to get cancer?” Read more …

Susan Beausang

By on October 7, 2010 | Category: Previvor Stories | No Comments

I am really excited to have found your website/blog. I too am a previvor. I come from three generations of breast cancer survivors, but I was determined to be my own advocate and create a separate survival story for myself. I would love to share my story with Previvors and those facing the same decision we have faced. Here’s a short version of my story:and join the Previvor Movement. Read more …

Judy Gomberg

By on October 7, 2010 | Category: Previvor Stories | 3 Comments

Hi Claudia – This is Judy Gomberg–Jodi’s NY friend who just completed-the last phase of the “Best “–possible surgery (and I need my eyes done) –I could ever imagine having. Although our stories are quite different–we clearly stood on the same line when they were passing out genes. Read more …

Emily

By on October 7, 2010 | Category: Previvor Stories | No Comments

My name is Emily and I am a “previvor,” or pre-survivor.  I haven’t developed cancer, but am at an increased risk for the disease because of a genetic mutation that makes cancer much more likely to occur. Read more …

Marissa Levesque

By on October 7, 2010 | Category: Previvor Stories | No Comments

Hello!  I would love to be able to share my story.  I am 24 years old and the mom of a 6 year old little girl.  I found out that I was BRCA1+ when I was 23.  September 15, 2009, I had a preventative mastectomy. Read more …

Discussion

Subscribe to the Previve Email List